MRC Cognition and Brain Sciences Unit
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Welcome to the BINGO project!Brain and Behaviour in Neurodevelopmental Disorders of Genetic Origin |
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If you are interested in taking part in the BINGO project, please click on ‘Register Now’ and complete the contact form – we will contact you with more information before you decide.
This project brings together developments in genetics, psychology, and brain sciences. We want to understand the range of problems that affect individuals with neurodevelopmental disorders, after a rare genetic cause has been found. We also want to understand how genetic differences affect brain function. In future, the information we gather might make it easier to support people with neurodevelopmental conditions, because we will have a better understanding of which patterns of difficulty are associated with each cause, and why these patterns of difficulty occur.
For ages 3 – 7 years we are currently including children with neurodevelopmental difficulties and any single gene disorder (a spelling difference in DNA affecting one gene). We are particularly keen to invite children with differences in the following genes:
DDX3X |
For ages 8 years and over (including adults), we are currently inviting the following list of genetic diagnoses (including younger children with these diagnoses too):
SYT1 |
BSN |
CLTC |
CPLX1 |
DNM1 |
MINT2 |
NRXN1/2 |
PCLO |
PRRT2 |
RAB11A/B |
RIMS1/3 |
RPH3A |
SNAP25 |
STX1A/B |
SV2A |
SYN1/2 |
SYNJ1/2 |
SYP |
TRIO |
UNC13A |
VAMP2/SYB |
STXBP1 |
TBC1D24 |
CACNA1A |
CASK |
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Here are some of the research activities which may be offered, depending on your child’s age and specific genetic diagnosis:
- Questionnaires – which ask about your child’s medical background, learning and behaviour.
- Play-based assessments at home – such as engaging your child with a toy or computer-based game.
- EEG at home – this involves your child wearing a cap with small sensors that record brain waves. It is harmless and non-invasive.
- Wearable device at home –this involves your child wearing a small band around the chest that records heart rate and physical activity, similar to one you might wear whilst exercising. It is harmless and non-invasive.
- MRI/ MEG at MRC Cognition and Brain Sciences Unit in Cambridge – for older participants, we may organise a brain scan.
Register your interest
If you and your family would like more information about the BINGO project, or to register your interest in taking part, please complete the below form. Alternatively, you can email bingo@mrc-cbu.cam.ac.uk By sending us a message you are not committing to taking part.
(Items marked with an asterisk are mandatory)
The BINGO team
BINGO is a research project involving researchers from the MRC Cognition and Brain Sciences Unit (CBU) at the University of Cambridge.
You may have some questions and we would be very happy to discuss these with you. If you wish to discuss this project, you can contact our team using this email address:
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| Dr Kate Baker
Principal Investigator |
Josefine Eck
Research Assistant |
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| Dr Reem (Eema) Al-Jawahiri
Postdoctoral Research Associate |
Jessica Martin
PhD Student |
Family Resources
We are pleased to announce that we are collaborating with various charities that aim to support people and families affected by genetic and brain disorders.
These organisations have a global network of families and provide information and practical guides as well as links to local groups and community events and activities.
Please visit their websites to find out more and become a member.
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We are grateful for support from the following funders
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